1 hour
California State Capitol
Free Tickets Available
Wed, 25 Jun, 2025 at 02:00 pm to 03:00 pm (GMT-07:00)
California State Capitol
1315 10th Street, Sacramento, United States
Rare skeletal conditions have been left out of the rare disease narrative in recent years. The status quo to “wait and see” what happens should not be the norm for the thousands of children born each year with rare skeletal conditions.
This in-person briefing will bring together policymakers, patients, and healthcare providers to highlight the critical need for early intervention, dignity in care, and support through multiple life stages.
Tickets for Advancing Support for the Rare Skeletal Conditions Community can be booked here.
| Ticket type | Ticket price |
|---|---|
| General Admission | Free |
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