CCVC friends and family! It's that time again! We've got a full day of volleyball and raffles to benefit 19 1/2 month old Stefano and the Tantillo family. Stefano was recently diagnosed with Duchenne Muscular Dystrophy (DMD).
DMD is a rare, but severe genetic disorder affecting muscle strength and function caused by the lack of the protein dystrophin. There are typically less than 200,000 cases of DMD each year.
This diagnosis will require lots of trips and out-of-pocket costs for the family to travel to Pittsburgh to see Stefano's specialist. We at the CCVC would like to help ease the financial burden, but most importantly, let Stefano and his family know that they're not alone!
The format will be a solo or buddy blind draw. The theme will be 'Dress Like Your Buddy'. Where possible (or if you're signing up solo), please wear green as this is the color for DMD awareness!
You will sign up as an individual or duo and be assigned (at random) to a team of 5 or 6 (depending on total number of participants). All participants can hit, block, etc. The number of men and women on each team will be determined based on signups.
The Nickel Plate Depot will be hosting our event. There are two nets at co-ed height. Check-in begins at 11:30 AM with play beginning promptly at noon. Format will be timed games of 12 minutes. Determination for the number of teams making playoffs will be announced prior to beginning the tournament and will be based on the number of teams. Single/double elimination will be determined day of depending on the number of teams and what time pool play is finished.
Pizza is included and will be provided prior to playoffs. We expect to conclude play between 6:00 and 6:30 PM.
50/50 and basket raffles will likely be drawn around 5:00 PM. If you are interested in donating a basket, please reach out to Mel Gifford, Ashley Stearns, or your event hosts.
ABSOLUTELY NO OUTSIDE ALCOHOL WILL BE TOLERATED. Anyone breaking this rule will be asked to leave immediately; no exceptions. Please support your venue hosts!
Skill level will be HIGH REC AND ABOVE. Kindly, no beginners for safety purposes. The CCVC reserves the right to decline entry based on historical cancellations or skill level (as voted on by the CCVC committee).
The cost is $25 per player. Please text or message Jenny or Kelsey to sign up:
Jenny Propheter: 716-969-4370
Kelsey Thomas: 716-397-7116
To secure your spot once you’ve signed up, please prepay via Venmo to @CCVC-716 . For other payment options (Zeffy, Zelle, cash, PayPal), please contact a host. Please include 7/20 in the comments with your Venmo payment.
This will show up as a donation instead of a payment due to our 501(c)3 status. Several people have had issues with Venmo processing lately. Tech support noted that you must have the most up to date version of Venmo to ensure this payment processes.
Please note that refunds will not be provided if you cancel with less than 24 hours notice.
We look forward to hosting you!
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