PSP-MSA-CBD Caregiving Symposium - In-Person (Stanford + BSN)

For this hybrid event, there are two ways to attend -- in-person at Stanford and virtually. This is the REGISTRATION WEBPAGE for IN-PERSON ATTENDANCE!

Join Stanford's Movement Disorders Center and Brain Support Network for this event for caregivers, partners, and family members who care for those with progressive supranuclear palsy (PSP), multiple system atrophy (MSA), or corticobasal degeneration (CBD), also known as corticobasal syndrome, or CBS.

This is a caregivers-only symposium. We kindly ask that people with PD, MSA or CBD not attend, so that in-person speakers, panelists, and attendees may speak openly about the caregiving.

Speakers include a Stanford movement disorder specialist on the topic of what to expect with these disorders; social workers on the effects neurological decline has on the family unit, caregiver stress, and available resources; and a panel of Brain Support Network PSP, MSA, and CBD caregiver support group members.

In-person attendance at Stanford is limited to 100 people. Register today to ensure your spot! The registration deadline for in-person attendance is Thursday, June 12, at noon PT. (We need time to order adequate lunches.)

Note: The day before the event, all registrants to the in-person event will receive a link to join the symposium online. (We know that "stuff" happens.)

If you prefer to attend online, see the registration link below!

PROGRAM

Dale G. Larson, PhD, Santa Clara University on the compassionate caregiver's journey.

Jessica Ng, MD, Stanford on what caregivers can do for PSP, MSA and CBD.

Amy Romarate, LCSW, Stanford and Christina Irving, LCSW, Family Caregiver Alliance on relationships, caregiver stress and resources.

After the lunch break, we'll feature a panel of caregivers coping with PSP, MSA or CBD. Many panelists are part of the local Northern/Central California Brain Support Network PSP/MSA/CBD support groups. Candy Welch, with Brain Support Network, will moderate.

RESOURCE TABLES

Before the speakers begin and during the lunch break and an afternoon break, visit exhibitor tables.

There will also be information tables for Stanford Neurology, Brain Support Network, and CurePSP, the event sponsor. Stanford research staff will be on-hand to tell you about PSP and CBD-related studies underway.

Contact us at Y29uZmVyZW5jZSB8IGJyYWluc3VwcG9ydG5ldHdvcmsgISBvcmc= if you are interested in exhibiting.

TICKETS - SPACE IS LIMITED

Tickets for in-person attendance are $35/each. This includes a healthy lunch. Parking is free.

If you are able, please purchase a ticket for $70 -- a single ticket for you and sponsorship for one person unable to afford a ticket.

If you are able to sponsor more than one person, please make a charitable contribution directly to Brain Support Network (brainsupportnetwork.org) and tell us your wishes.

If you have a financial need and cannot afford a ticket, please email the conference organizers (Y29uZmVyZW5jZSB8IGJyYWluc3VwcG9ydG5ldHdvcmsgISBvcmc=) to request a scholarship ticket!

Register today to ensure your spot! The deadline for in-person attendance is Thursday, June 12, at noon so that we have time to order adequate lunches.

Note: By completing the registration, you agree that you may be photographed or recorded during the symposium. See the image/recording policy.

DETAILS

This event runs from 10am to 3pm PT. No Eventbright ticket or barcode is required, we will check attendees in by checklist at the door. Doors open at 9:30am. Coffee, water, and snacks are available during registration. Lunch is provided and can be enjoyed outside. (Sunny and shady spots available.)

Parking (including accessible parking) at Stanford's Center for Academic Medicine is free and plentiful. We highly encourage parking in the garage beneath the building. There are also surface lots adjacent to the building. From adjacent lots, walk/wheel about a block to the meeting room. From the parking garage (beneath the building), take an elevator to the meeting room level.

As with any in-person event these days, masks are encouraged but not required. (There are lots of covid outbreaks at care facilities as of early June.)

Afterwards, visit the historic Stanford Arizona Garden -- a short walk/wheel along a gravel path from the Center for Academic Medicine. Or drive to the nearby Cantor Arts Center.

We have a printable map that can help you find the venue and parking.

QUESTIONS?

Contact Y29uZmVyZW5jZSB8IGJyYWluc3VwcG9ydG5ldHdvcmsgISBvcmc= with questions. Best to contact the Brain Support Network team no later than Friday, June 13, Noon PT. On Saturday, June 14, we will monitor emails up until about 11am PT.

THANK YOU!

We thank our event sponsor, CurePSP. And thank you to everyone who purchases a "scholarship" ticket so that we may offer attendance to those with a financial need.


RESOURCES and RECORDING

Within a few weeks of the event, we will email everyone who registered a list of resources from Stanford Neurology, Brain Support Network, and CurePSP.

The symposium will be recorded. We will also share a link to the recording with EVERYONE who registered (whether you attended or not).

DO YOU PREFER TO ATTEND VIRTUALLY?

Register here for online attendance: https://bit.ly/june14atypical-virtual

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