Deep Dive Session – Health Data Forum Global Hybrid Summit 2025

Join us in Cardiff on Tuesday, 24 September 2025 (14:00–17:00 BST) for an exclusive Deep Dive Session ahead of the Health Data Forum Global Hybrid Summit.

Hosted at the Digital Transformation Innovation Institute (DTII), Cardiff University, this interactive session will bring together international experts, patient representatives, and thought leaders to explore how genomics, patient safety, and patient engagement can be combined to build trust and drive data-driven healthcare transformation.

Unlike traditional conferences, the Deep Dive format is designed for focused dialogue and collaboration. Short scene-setting inputs will be followed by breakout discussions where participants will co-create a “Joint Charter on Trustworthy Secondary Use of Health Data.”

• Genomics innovation and its impact on patient safety
• Trusted Research Environments (TREs) and data integration
• Consent models, trust, and equity in secondary use of health data
• Translating research into real-world policy and governance

• Engage directly with leading voices from WHO Europe, SNOMED International, NHS Wales, the Basque Government, EUPATI, and use MY data.
• Contribute your perspective to shaping the future of trustworthy data use in healthcare.
• Connect with peers in an intimate, collaborative environment ahead of the main Summit at voco St David’s Hotel (25–26 September): https://www.healthdataforum.org/global-summit-2025/

Registration is free of charge, but places are limited — secure your seat today.

Info: João Breda (WHO Europe, joining virtually via MS Teams) + Angharad Watson (DTII host)

Info: • Antonio Pardinas – Genomics & Mental Health: UKRI's Mental Health Platform in Wales

• Iñaki Gutiérrez-Ibarluzea – Safety frameworks & HTA

• Ian Green – Genomics & clinical engagement (SNOMED International)

• Finn McCartney – Patient education & literacy

• Ceri Steele & Chris Carrigan – Lessons from use MY data

Info: - Genomics Data Generation & Sharing (Antonio Pardinas)


- Building trust & involving patients in data studies (Finn McCartney)


- Transparency and patient expectations of data use (Ceri Steele & Chris Carrigan)

Info: Each group presents key insights.


Drafting of a “Joint Charter on Trustworthy Secondary Use of Health Data.”

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