Addy’s run is an annual 5k run/walk to help raise awareness for CLOVES: a rare disease that affects about 250 people world wide.
Adalynn “Addy” is a local Waterford resident who was born with CLOVES in April 2017. Our mission is to educate the world about this rare disease and help those who are affected by it through donation, support and awareness. Proceeds from this race will be donated to the CLOVES community towards research to help find treatment options for this incurable disease.
❣️ EXCITING NEWS! ❣️
This year, Addy's Run has partnered with CLOVES Syndrome Community, a larger organization dedicated to supporting individuals and families affected by this rare condition.
By joining forces, we'll have more opportunities to expand awareness, provide resources, and strengthen support for those impacted. Together, we can make a greater difference in driving education, advocacy, and hope for the CLOVES community.
💚💜 Rest assured, nothing about Addy's Run itself is changing- it'll still run the way it always has been, by our family, with love and organized right from the kitchen table.💚💜
TO DONATE AND LEARN MORE ABOUT OUR COMMUNITY, PLEASE USE THE LINK PROVIDED HERE:
https://clovessyndrome.org/addys-run-5k-race
This year the Kona Ice Truck will be present on race day! They will be donating a percentage of their sales to the run.
As always, we will also have lots of great raffles!
Mark your calendars and plan to come run this beautiful flat terrain along Long Island sound.
Registration IS OPEN!!!
https://runsignup.com/Race/CT/Waterford/AddysRun
Also check out other Sports events in Waterford, Nonprofit events in Waterford.
