Benefit Ride for "Mighty Mouse" Ian

#IanStrong#MightyMouse

Ian Grant was born on May 3rd, weighing 3 lb 13oz after Drs discovered he stopped thriving in the womb. Affectionately dubbed Mighty Mouse by his Dad, Ian has proven every day what a tough little guy he is. After presenting with several complications soon after birth and undergoing numerous tests, his parents were given the devastating news that he has Zellweger Syndrome. Zellweger Syndrome is a rare genetic disorder that leads to a wide range of symptoms and developmental delays.

Ian who is currently presenting with liver dysfunction and prolonged jaundice as well as other complications has been transferred to UVA in Charlottesville.

Ian's parents Justin and Stephanie have been by his side every day. Justin, a veteran, who served in Afghanistan during Operation Enduring Freedom must return to work soon. And Stephanie, a dedicated RN devoted to caring for her patients, spent endless hours on the COVID unit.

Ian's future needs are uncertain at this time. There is no cure for Zellwegers, only treatment of symptoms. Ian's family desires your prayers for him, for the specialist treating him, and for the best outcome possible.

Ian has been started on medication to treat his liver. We are hoping to see positive results. This medicine is very expensive.

Along with everyday living expenses, the added expense of an extended hospital stay can be overwhelming. Parents of a sick newborn shouldn't have to worry about finances as well.

Registration @ 9am
Engine start/ Kick Stands up @10am

Raffle Tickets
50/50 Drawing


#IanStrong#MightyMouse

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