Register here:
🔗
https://secure.qgiv.com/event/2025stepstowardacuremichigan/
📍 Location:
Kensington Metropark – North Martindale Picnic Shelter
4570 Huron River Parkway, Milford, MI 48380
📅 Event Date & Time:
Saturday, September 27 | 8:00 AM – 1:00 PM
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Dravet Syndrome Foundation’s 3rd Annual Steps Toward a Cure: Michigan
Join us for a 5K run, kids fun run, and 1-mile family walk—plus family-friendly activities, a silent auction, and food throughout the day!
This event helps raise critical awareness and funds for research and patient support for Dravet Syndrome, a rare and catastrophic form of epilepsy that begins in infancy. All proceeds support the Dravet Syndrome Foundation’s mission to fund research and improve outcomes.
👟 Event Highlights:
• Timed 5K run with medals for all participants
• Kids fun run (1/2 mile or less)
• 1-mile family walk
• Silent auction, family activities, and kids’ games
• Bagels, donuts, and coffee in the morning; lunch provided
• Free registration for individuals with Dravet Syndrome or epilepsy (with a registered adult)
• All participants receive an event T-shirt*
*Register by August 25 to guarantee your shirt!
🕘 Schedule:
8:00 AM – Check-in & Onsite Registration (includes race packet pickup)
8:00 AM – Morning refreshments
9:00 AM – Timed 5K begins
9:15 AM – Kids Fun Run
10:00 AM – Family Walk
11:00 AM – Lunch served
10:30–1:00 – Silent auction & family activities continue
💵 Registration:
• Adults (Walk and/or 5K): $35
• Kids (Ages 3–17): $20
• Free for individuals with Dravet Syndrome or epilepsy (with a registered adult)
⸻
Why We Walk:
Charlie is our sweet, energetic 4-year-old who loves trains, monster trucks, and Hot Wheels. At just 6 months old, he was diagnosed with Dravet Syndrome—a rare and severe form of epilepsy with no cure.
He’s faced daily challenges: frequent seizures, ambulance rides, emergency medications, hospital stays, and constant therapies. Despite being on three daily medications and a strict medical diet, he still experiences 6–10 seizures every month.
Through it all, Charlie’s smile never fades. He’s the heart of our family and our biggest hero. 💜
We’ve seen incredible progress in Dravet research over the past decade, but there’s still a long way to go. Your support—whether by walking, running, donating, or spreading the word—makes a real difference.
Hope to see you there!
⸻
Learn more & register:
🔗
https://secure.qgiv.com/event/2025stepstowardacuremichigan/
Also check out other Kids events & activities in New Hudson, Nonprofit events in New Hudson, Sports events in New Hudson.
