You're Invited! PWS Christmas Party and an opportunity to connect with other families in a relaxed and supportive environment and learn about PWS treatment updates. This is FREE! We also hope to offer free lodging to help make this event accessible to everyone! Check back as we await funding confirmation from potential Sponsors. They expect to work with us to make this event completely accessible!
The party is 2-4, but we will have access to the conference room, indoor pool, and fitness room throughout the evening, so feel free to stay and gather as long as you like.
🎉 Santa and his helpers will be there to give a gift to every child and person with PWS! Provide name and ages by Dec 3 so Santa can finish his list:
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Refreshments: A low-calorie snack and choice of diet drink or bottled water will be available for all attendees.
Fun & Activities: Activities specially chosen for our guests with PWS will be provided.
💡 PWS Research & Updates
We hope to have the latest information on promising treatments and studies available to you:
VYKAT XR Drug Access (Soleno Therapeutics): A representative from Soleno Therapeutics is a potential sponsor. They would be available to answer all your questions about PWS treatment and insurance coverage. They have particular news for residential facilities.
HERO Study (Aardvark Therapeutics): Information about this exciting study, including new potential expansion of age eligibility, would be available (though a representative will not be present).
PWSA Map: Help will be available to get connected and navigate the PWSA Map resource.
✅ RSVP IS REQUIRED
Please RSVP by December 3rd:
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Include the name and age of every child and person with PWS so Santa can plan his gifts. Also give the total number of people in your group.
Also check out other Parties in Fairview, Entertainment events in Fairview.
