# Event Details

- **Event Name**: Steps for Stronger Lungs! 
- **Event Start and End Date**: Sat, 18 Apr, 2026 at 10:00 am
- **Event Description**: We’re excited to be hosting the 2nd Annual CDH 5k! 
We’ve created this event in honor of our tiny hero, Khoy and every baby diagnosed with Congenital Diaphragmatic Hernia, a very rare but life threatening condition. 

Congenital Diaphragmatic Hernia (CDH) is when a baby’s diaphragm doesn’t form completely. This leaves a hole, allowing organs to move into the chest. When those organs move into the chest, they crowd the heart and lungs causing pulmonary hypoplasia, breathing issues, and pulmonary hypertension . In Khoy’s case, (left sided cdh) his bowel, kidney and a bit of stomach bubble were in his abdomen. Increased volume loss in left lung and heart on the opposite side of the chest. 

At 24 weeks we were sent to Fetal Medicine in STL and were given the diagnosis of Congenital Diaphragmatic Hernia. Terrified and never having heard of this condition before we were in disbelief. We were told there would be a 50%-70% survival rate possibly higher with STL Children’s being a leading treatment center. We were quickly discussing what our next steps were and what life would look like at birth and the months & years to come. 
Khoy received his life saving surgery at just 5 days old and spent 43 days in the NICU.  

Our first three weeks we were in the dreaded corner of the NICU for the most critical of patients. Four other babies right next door to us, all born that week and all born with CDH. (Unheard of!)

There we quickly heard of the Tiny Hero Charity Organization! Tiny Hero’s mission is to help families find the best care, supports families through financial grants & care packages, and offers a supportive community. 
Tiny Hero is a registered nonprofit, and all funds raised will go directly to helping CDH families with anything they may need. 

This organization is very important to us & we are thrilled to be able to host this 5k and give back to the CDH community. 

Thank you for participating, donating, sharing, and helping raise awareness for these tough little babies! 

Lots of love- 
Eric, Emma, Kollyns & Khoy! ???

To donate: https://runsignup.com/Race/IL/Pittsfield/StepsForStrongerLungs5K

*Don’t miss any announcements! Scroll over to discussion to see updates.
- **Event URL**: https://allevents.in/pittsfield/steps-for-stronger-lungs/200029706760631
- **Event Categories**: nonprofit, sports, charities
- **Interested Audience**: 
  - total_interested_count: 136

## Ticket Details

- **Ticket URL**: http://facebook.com/200029706760631?utm_source=AllEvents.in&utm_medium=event-discovery-platform&utm_campaign=pittsfield-events

## Event venue details

- **city**: Pittsfield
- **state**: IL
- **country**: United States
- **location**: Pittsfield Lake
- **lat**: 39.632672092441
- **long**: -90.755957583155
- **full address**: Pittsfield Lake, Pittsfield,IL,United States

## Event gallery

- **Alt text**: Steps for Stronger Lungs!
  - **Image URL**: https://cdn-az.allevents.in/events3/banners/edd26b26aae595c47c01c9139755c522e62300107afbbaf2e349fbd41dc97209-rimg-w1080-h1920-dc000000-gmir?v=1776377470

## FAQs

- **Q**: When and where is Steps for Stronger Lungs!  being held?
  - **A:** Steps for Stronger Lungs!  takes place on Sat, 18 Apr, 2026 at 10:00 am to Sat, 18 Apr, 2026 at 10:00 am at Pittsfield Lake, Pittsfield,IL,United States.
- **Q**: Who is this event for? Is it right for me?
  - **A:** Steps for Stronger Lungs!  is ideal for sports fans, athletes, fitness enthusiasts, and anyone who loves the thrill of live competitive action and the energy of a crowd. Whether you're a first-time attendee or a longtime enthusiast in Pittsfield, this event is thoughtfully curated to deliver a standout experience worth every moment. With 130+ people already showing interest, this is clearly an event worth adding to your calendar - don't miss out.

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