Down Syndrome Community Educational Day

Join us for a day of learning, connection, and empowerment at the inaugural Down Syndrome Community Education Day.

About this Event

Join us for a day of learning, connection, and empowerment at the inaugural Down Syndrome Community Education Day, an event designed for families, caregivers, and professionals supporting individuals with Down syndrome.

This year’s program will feature leading specialists and advocates sharing current evidence-based insights and practical tools to enhance quality of life and lifelong development. Topics include Down Syndrome Regression Disorder, as well as Transition Planning and Self-Advocacy to help families and youth prepare for greater independence and confidence.

Participants will be able to join age-specific breakout sessions tailored to key stages of growth:

· Ages Under 5: Early Motor Milestones and Feeding & Nutrition to support strong foundations in movement, rest, and health.

· Ages 6 and Up: Sleep and Advocating in the School System to guide families through the school-age and teen years.

The day will provide expert guidance, community connection, and actionable strategies to support individuals with Down syndrome at every stage of life.

The 2026 Down Syndrome Community Education Day will be offered in-person only.

The first 50 registrants will be entered to win a gift basket! Must be in-person and present to win.


Registration Information

This event is open to all – parents, caregivers, educators, and community members who support and celebrate individuals with Down Syndrome.

$5.00 – In-Person

We want everyone to feel welcome and supported. Scholarships and financial assistance are available – simply email us at to apply.

Please Note: Seating is limited and available on a first-come, first-served basis.

Your registration fee helps support this program. For those attending in person, it also includes a light breakfast, lunch, snacks, and refreshments throughout the day. Proceeds from the event will benefit the Barrow at Phoenix Children’s Down Syndrome Clinic Fund #1350 , supporting services and resources for families in our community.

Payment is due at the time of registration.

Agenda


🕑: 08:00 AM - 09:00 AM
Registration Opens & Light Breakfast

🕑: 09:00 AM
Opening Remarks
Host: Dannah Raz, MD, MPH

🕑: 09:00 AM - 09:40 AM
Down Syndrome Regression Disorder
Host: Harlori K. Bains, MD

🕑: 09:40 AM
Break

🕑: 09:45 AM - 11:00 AM
Breakout A (5 & under)

🕑: 09:45 AM - 10:15 AM
Early Motor Milestones in Children with Down Syndrome (Breakout A)
Host: Abby Adelman, DPT

🕑: 10:30 AM - 11:00 AM
Nutrition in Children with Down Syndrome (Breakout A)
Host: Lucy Heldridge, SLP

🕑: 09:45 AM - 11:00 AM
Breakout B (6 & Older)

🕑: 09:45 AM - 10:15 AM
Sleep Challenges in Children with Down Syndrome
Host: Bobbie Jo Hopkins, MD

🕑: 10:25 AM - 10:55 AM
Advocating for Children with Down Syndrome in the School
Host: Mary Kay Mojgani

🕑: 11:00 AM
Lunch

🕑: 11:30 AM
Transition and Self Advocacy
Host: Dannah Raz, MD, MPH

🕑: 12:25 PM - 12:30 PM
Closing Remarks

🕑: 12:30 PM
Adjourn

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