Event

Dragonfly Walk/CTNNB1 Awareness 2.5 mile walk

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Come support Julius and his walk with CTNNB1 syndrome!!! We are unceasingly praying and advocating for the continued research of this rare condition. Julius has defied many odds in-spite of this diagnosis and it does come with many unknowns.

We ask all that can to come join us in a 2.5 mile walk for CTNNB1 Day July 25, 2025.

Please wear blue or yellow.
If you can not attend please commit to walk 2.5 miles that day and post a short video on our support group page to show Juju and all the other dragonflies around the world some love.

If you are able, we also provided a link for donations to be made to the foundation for CTNNB1 syndrome. I am asking for everyone that knows Juju to donate $2.50.

Hope to see you there!
https://curectnnb1.org/get-involved/donate/



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