Move for Malan at The Little Gym of Toms River! π€ΈββοΈπ»
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β¨ Move for Malan! β¨
A Family Fun Event at The Little Gym of Toms River to Support Malan syndrome Research π€ΈββοΈ
π Date: Friday, 8/8/25
π Time: 4-6PM
π Location: The Little Gym of Toms River
Join us at The Little Gym for a high-energy, heart-filled event to support the Malan Syndrom Foundationβs Virtual Run, Walk, and Roll 5K! Kids and families will jump, roll, and tumble their way through fun movement challenges, obstacle courses, and gamesβall while raising money for Malan syndrome research.
π Event Highlights:
β Obstacle Courses
β Games
β Crafts
β Snacks & Goodies
β Raffle & Prizes
$15 per child. Cash or Venmo only!
All proceeds benefit the Malan Syndrome Foundation
Every flip, step, and smile makes a difference. Letβs Move for Malan! π»π€ΈββοΈ
Learn more at: https://www.malansyndrome.org
Donate directly: https://runsignup.com/CarminesCrew
_______________________________________________________
Meet Carmine π
Carmine is the son of Coach Deanna and Mr. Jared. He has Malan Syndrome, an ultra-rare genetic disorder caused by changes in the NFIX gene. There are roughly 350 individuals with Malan Syndrome worldwide!
Many families, doctors, and even specialists may never encounter it, which is why raising awareness and supporting research is so important.
People with Malan syndrome may experience developmental delays, overgrowth, intellectual disability, vision and/or hearing impairment, skeletal anomalies, epilepsy, anxiety and low muscle tone but they also show incredible strength, resilience, and joy.
Letβs rally around Carmine and the sunflower community by funding life-changing research. π»
A Family Fun Event at The Little Gym of Toms River to Support Malan syndrome Research π€ΈββοΈ
π Date: Friday, 8/8/25
π Time: 4-6PM
π Location: The Little Gym of Toms River
Join us at The Little Gym for a high-energy, heart-filled event to support the Malan Syndrom Foundationβs Virtual Run, Walk, and Roll 5K! Kids and families will jump, roll, and tumble their way through fun movement challenges, obstacle courses, and gamesβall while raising money for Malan syndrome research.
π Event Highlights:
β Obstacle Courses
β Games
β Crafts
β Snacks & Goodies
β Raffle & Prizes
$15 per child. Cash or Venmo only!
All proceeds benefit the Malan Syndrome Foundation
Every flip, step, and smile makes a difference. Letβs Move for Malan! π»π€ΈββοΈ
Learn more at: https://www.malansyndrome.org
Donate directly: https://runsignup.com/CarminesCrew
_______________________________________________________
Meet Carmine π
Carmine is the son of Coach Deanna and Mr. Jared. He has Malan Syndrome, an ultra-rare genetic disorder caused by changes in the NFIX gene. There are roughly 350 individuals with Malan Syndrome worldwide!
Many families, doctors, and even specialists may never encounter it, which is why raising awareness and supporting research is so important.
People with Malan syndrome may experience developmental delays, overgrowth, intellectual disability, vision and/or hearing impairment, skeletal anomalies, epilepsy, anxiety and low muscle tone but they also show incredible strength, resilience, and joy.
Letβs rally around Carmine and the sunflower community by funding life-changing research. π»
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