# Event Details

- **Event Name**: Billy’s cruise for pobinds syndrome 
- **Event Start and End Date**: Sun, 02 Nov, 2025 at 12:00 am
- **Event Description**: Hey everyone!! 

The ride will be to gisborne for a beer/drink or just a break at the telegraph hotel for approx 45min then head into port Melbourne to big Earles Bbq For a feed for anyone who’d like to join 

Meeting point for the ride:

Bp truck stop cooper st Epping 9am stands up 10am  ??

$20 per bike or car 

We’re hosting this charity ride to raise awareness and support for children affected by CSNK2B a rare and often devastating condition. While we generally share stories of progress and hope, the reality is that so much about CSNK2B is still unknown. Some children, like our Billy, may be doing okay right now, but others are not as fortunate. Many experience relentless, treatment-resistant (refractory) seizures that land them in the ICU, where they can lose hard earned developmental gains. With no effective treatments currently available, we urgently need to fund research. Our goal is to help scientists uncover the pathways to gene therapy and targeted treatments, giving these children a real chance at a brighter, more stable future.


Weather permitting 26th of oct will be the day 

Here is the link to
The gofund me I’ve created 

https://gofund.me/211cd9710
- **Event URL**: https://allevents.in/melbourne/billys-cruise-for-pobinds-syndrome/200029077340655
- **Event Categories**: meetups, nonprofit, charities
- **Interested Audience**: 
  - total_interested_count: 80

## Ticket Details

- **Ticket URL**: http://facebook.com/200029077340655?utm_source=AllEvents.in&utm_medium=event-discovery-platform&utm_campaign=melbourne-events

## Event venue details

- **city**: Melbourne
- **state**: VI
- **country**: Australia
- **location**: Melbourne, Australia
- **lat**: -37.815987763559
- **long**: 144.9685118889
- **full address**: Melbourne, Australia

## Event gallery

- **Alt text**: Billy’s cruise for pobinds syndrome
  - **Image URL**: https://cdn-az.allevents.in/events8/banners/0dfcc7b12d7e307ca656804d1ce3fa8fc0ffbdd18e9ac2c31d7c6f9dba2364a4-rimg-w946-h2048-dc000000-gmir?v=1761334431

## FAQs

- **Q**: When and where is Billy s cruise for pobinds syndrome  being held?
  - **A:** Billy s cruise for pobinds syndrome  takes place on Sun, 02 Nov, 2025 at 12:00 am to Sun, 02 Nov, 2025 at 12:00 am at Melbourne, Australia.

## Structured Data (JSON-LD)

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        "@type": "Event",
        "name": "Billy’s cruise for pobinds syndrome",
        "image": "https://cdn-az.allevents.in/events8/banners/0dfcc7b12d7e307ca656804d1ce3fa8fc0ffbdd18e9ac2c31d7c6f9dba2364a4-rimg-w946-h2048-dc000000-gmir?v=1761334431",
        "startDate": "2025-11-02",
        "url": "https://allevents.in/melbourne/billys-cruise-for-pobinds-syndrome/200029077340655",
        "location": {
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            "name": "Melbourne, Australia",
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        "eventAttendanceMode": "https://schema.org/OfflineEventAttendanceMode",
        "description": "Hey everyone!! \n\nThe ride will be to gisborne for a beer/drink or just a break at the telegraph hotel for approx 45min then head into port Melbourne to big Earles Bbq For a feed for anyone who’d like to join \n\nMeeting point for the ride:\n\nBp truck stop cooper st Epping 9am stands up 10am  ??\n\n$20 pe"
    }
]
```