

# Event Details

- **Event Name**: Gene Therapy in Haemoglobinopathies Study Day
- **Event Start and End Date**: Fri, 15 May, 2026 at 09:00 am – Fri, 15 May, 2026 at 04:00 pm (+01:00)
- **Event Description**: Register for a 1‑day UCLH study day on gene therapy pathways, sharing our experience delivering advanced treatmentsAbout this EventThis 1‑day study day will explore the full multidisciplinary pathway for gene therapy in haemoglobinopathies.UCLH is a leading centre for gene therapy delivery in the south of the UK, with the first patient in the country receiving the revolutionary gene‑editing treatment Casgevy here. This study day is designed to share our experience, showcase our capabilities, and support referring centres and teams developing their own gene therapy pathways.A breakthrough for Beta Thalassaemia: The First Patient in the South of the UK Treated at UCLHIn 2025, a UCLH patient, Kavita Mehta, became the first person in the south of the UK to receive the new gene‑editing therapy Casgevy.Kavita had relied on blood transfusions every 3–4 weeks since she was a baby. The constant cycle of transfusions and iron chelation shaped every part of her life — school, travel, work, and day‑to‑day routines.After receiving four phials of Casgevy in November, she spent six weeks recovering at UCLH as her body began producing normal red blood cells for the first time since infancy. She was discharged just before Christmas — her first ever Christmas not planned around a transfusion schedule.As UCLH haematology consultant Dr Ben Carpenter explains:“We are pleased with the way things are going for our first patient… We are now seeing normal red blood cells being produced by her own bone marrow for the first time since she was born.”This represents a potential cure for many patients — without donor shortages, rejection risks, or transplant‑related complications.Who should attend this study day?This session is aimed at:Referring centres seeking to understand eligibility, pathways, and referral processesTeams planning to establish a gene therapy service, including setup considerations, governance, and capacityRed‑cell teams looking to update knowledge on rapidly evolving gene‑therapy optionsClinical leaders and managers wanting to understand the wider implications for service design and demandWhat will be covered?This 1‑day study day will explore the full multidisciplinary pathway for gene therapy in haemoglobinopathies, including:Introduction and overview of gene therapy and haemoglobinopathiesRed‑cell pathways: patient selection, clinical pathways, and decision‑makingRed‑cell CNS perspective: educational needs and psychosocial considerationsGene therapy pathway: clinical trials, eligibility, outcomes, and rationaleCellular therapy nursing role: coordination and patient support across the pathwayApheresis and laboratory processes: ensuring high‑quality stem‑cell collectionInpatient care: busulfan sampling, monitoring, and safe delivery of therapyPh*rm*cy role: ensuring safe preparation, handling, and administration of gene therapyFertility considerations: reproductive counselling and pathway planningPsychological support: psychosocial frameworks for patient wellbeingPanel discussion: future directions and opportunitiesRegister today before places sell out! Agenda🕑: 08:45 AM - 09:00 AMRegistration - Tea &amp; Coffee🕑: 09:00 AM - 09:10 AMWelcome, Course Overview and Learning Objectives Host: Charina Ocampo, Lead CNS for Cellular Therapies, UCLH 🕑: 09:10 AM - 09:40 AMThe Red Cell Journey: From Supportive Care to Curative InnovationHost: Dr Perla Eleftheriou, Red Cell Consultant UCLH 🕑: 09:40 AM - 10:10 AMThe Red Cell CNS Role in the Transplant and Gene Therapy PathwayHost: Enitan Roberts, Red Cell CNS UCLH🕑: 10:10 AM - 10:40 AMCurative Decision-Making in HaemoglobinopathiesHost: Dr Ben Carpenter, Bone Marrow Transplant Consultant UCLHInfo: Allogeneic HSCT, Clinical Trials, or Gene Therapy🕑: 10:40 AM - 11:10 AMRefreshments break &amp; networking🕑: 11:10 AM - 11:40 AMThe Role of the Cellular Therapies CNS in Gene Therapy Delivery Host: Sophie Lazell, Cellular Therapies CNS, UCLH🕑: 11:40 AM - 12:20 PMApheresis and Stem Cell Laboratory Validation: From Collection to Processing  Host: Elisabetta Ghirardi, Apheresis Sister, UCLH  🕑: 12:20 PM - 12:50 PMInpatient Admission for Stem Cell Harvest, Conditioning, and PK SamplingHost: Emily Armstrong, Ward Sister, UCLH🕑: 12:50 PM - 01:10 PMPharmacist Perspective: Conditioning, PK Monitoring and Supportive Care Host: Reena Patel, Senior Pharmacist, UCLH🕑: 01:10 PM - 02:10 PMLunch &amp; Networking🕑: 02:10 PM - 02:40 PMTBC - Fertility Risk Assessment and Preservation in Myeloablative Therapies 🕑: 02:40 PM - 03:10 PMPsychosocial Support in Transplant: Managing Expectations and Emotional ImpactHost: Dr Ruth Anderson, Psychologist, UCLH🕑: 03:10 PM - 03:50 PMPatient Reflection: Where Are We Now and What Comes Next?Host: Dr Ben Carpenter, Bone Marrow Transplant Consultant UCLH🕑: 03:50 PM - 04:00 PMFeedback &amp; CloseHost: Charina Ocampo, Lead CNS for Cellular Therapies, UCLH
- **Event URL**: https://allevents.in/london/gene-therapy-in-haemoglobinopathies-study-day/100001984370364177
- **Event Categories**: Business, Workshops
- **Interested Audience**: 
  - total_interested_count: 0

## Ticket Details

- **Ticket URL**: https://consumer.pxf.io/c/1339408/3151484/39691?partnerpropertyid=1191892&MediaPartnerPropertyId=1191892&svlink=14105511&level=1&u=https%3A%2F%2Fwww.eventbrite.com%2Fe%2Fgene-therapy-in-haemoglobinopathies-study-day-tickets-1984370364177
- **Ticket Price Range**: min: 0, max: 0, currency: USD

## Event venue details

- **city**: London
- **state**: EN
- **country**: United Kingdom
- **location**: UCH Education Centre
- **lat**: 51.5256325
- **long**: -0.1370577
- **full address**: UCH Education Centre, 250 Euston Road, London, United Kingdom

## Event Organizer details

- **affiliate_id**: 10
- **organizer**: UCLH Cancer Academy (https://allevents.in/org/uclh-cancer-academy/27605824)

## Event gallery

- **Alt text**: banner
  - **Image URL**: https://cdn-az.allevents.in/events5/banners/66bed7c9a2ad6fd560bf266a226b28d4ed01cf2a109adf9262c3f928952347f0-rimg-w1200-h600-dcc4eafc-gmir.jpg?v=1774136127
- **Alt text**: thumbnail
  - **Image URL**: https://cdn-az.allevents.in/events5/banners/5268910480e4eee0bbf4ca6251d58543d80d5a7334acc4a5b581b5345775959c-rimg-w400-h400-dcc4eafc-gmir.jpg?v=1774136127

## FAQs

- **Q**: When is the event happening?
  - **A:** Fri, 15 May, 2026 at 09:00 am (+01:00)
- **Q**: Where is the event happening?
  - **A:** UCH Education Centre, 250 Euston Road, London, United Kingdom
- **Q**: What is the ticket price?
  - **A:** starting from 0 up to 0 USD
- **Q**: Who is organizing the event?
  - **A:** UCLH Cancer Academy
- **Q**: What type of event is this?
  - **A:** Business, Workshops
- **Q**: Where can I find ticket details about Gene Therapy in Haemoglobinopathies Study Day ?
  - **A:** You can find ticket details about this event on AllEvents.

## Structured Data (JSON-LD)

```json
[
    {
        "@context": "https://schema.org",
        "@type": "Event",
        "name": "Gene Therapy in Haemoglobinopathies Study Day",
        "image": "https://cdn-az.allevents.in/events5/banners/66bed7c9a2ad6fd560bf266a226b28d4ed01cf2a109adf9262c3f928952347f0-rimg-w1200-h600-dcc4eafc-gmir.jpg?v=1774136127",
        "startDate": "2026-05-15T09:00:00+01:00",
        "endDate": "2026-05-15T16:00:00+01:00",
        "url": "https://allevents.in/london/gene-therapy-in-haemoglobinopathies-study-day/100001984370364177",
        "eventStatus": "https://schema.org/EventScheduled",
        "location": {
            "@type": "Place",
            "name": "UCH Education Centre",
            "address": {
                "@type": "PostalAddress",
                "streetAddress": "250 Euston Road",
                "postalCode": "NW1 2PG",
                "addressLocality": "London",
                "addressRegion": "EN",
                "addressCountry": "GB"
            },
            "geo": {
                "@type": "GeoCoordinates",
                "latitude": "51.5256325",
                "longitude": "-0.1370577"
            }
        },
        "eventAttendanceMode": "https://schema.org/OfflineEventAttendanceMode",
        "description": "Register for a 1‑day UCLH study day on gene therapy pathways, sharing our experience delivering advanced treatments",
        "offers": [
            {
                "@type": "AggregateOffer",
                "availability": "https://schema.org/InStock",
                "priceCurrency": "USD",
                "availabilityStarts": "2026-03-21",
                "availabilityEnds": "2026-05-15T16:00:00+01:00",
                "validFrom": "2026-03-21",
                "lowPrice": "0.00",
                "highPrice": "0.00",
                "price": "0.00",
                "url": "https://allevents.in/london/gene-therapy-in-haemoglobinopathies-study-day/100001984370364177"
            },
            {
                "@type": "Offer",
                "availability": "https://schema.org/InStock",
                "priceCurrency": "USD",
                "availabilityStarts": "2026-03-21",
                "availabilityEnds": "",
                "validFrom": "2026-03-21",
                "url": "https://allevents.in/london/gene-therapy-in-haemoglobinopathies-study-day/100001984370364177",
                "price": 0,
                "name": "Book Your Place"
            }
        ],
        "organizer": [
            {
                "@type": "Organization",
                "name": "UCLH Cancer Academy",
                "url": "https://allevents.in/org/uclh-cancer-academy/27605824",
                "description": "The UCLH Cancer Academy has been established to empower clinical teams to transform ideas into impactful, accessible education for internal and external healthcare professionals."
            }
        ]
    }
]
```