# Event Details

- **Event Name**: Precision Medicine for Genetically Defined Ehlers-Danlos Syndromes
- **Event Start and End Date**: Thu, 03 Sep, 2026 at 09:00 am – Fri, 04 Sep, 2026 at 05:00 pm (+02:00)
- **Event Description**: The Ehlers-Danlos Society is delighted to be hosting the Precision Medicine for Genetically Defined Ehlers-Danlos Syndromes event, taking place on September 3-4, 2026, in Ghent, Belgium. This is a hybrid event that can be viewed from anywhere in the world, in over 60+ languages.

This event is for healthcare professionals, researchers, scientists, patient representatives, and policy-makers

The Ehlers-Danlos Syndromes (EDS) are a group of rare, heritable connective tissue disorders that affect the body in many ways. While most types of EDS are linked to genetic changes, the mechanisms that link these changes to phenotypic outcomes remain poorly understood.

Individuals with the same diagnosis can present differently, presenting significant challenges for diagnosis, treatment, and management.

Traditional “one-size-fits-all” approaches do not address the complexity experienced by those with the Ehlers-Danlos syndromes. Precision medicine—care tailored to genetic, biological, and personal factors—offers hope for more effective management strategies.

For conditions such as the Ehlers-Danlos syndromes, advancing precision medicine requires foundational research, and international collaboration is crucial.

This global networking event will bring together clinicians, established and early-career scientists, patient representatives, policymakers, and other key stakeholders to advance collective understanding and action in genetically defined types of EDS.

Through multidisciplinary collaboration and elevating patient voices to reflect lived experience, we aim to create a shared roadmap for advancing precision medicine in EDS.

https://www.ehlers-danlos.com/precision-medicine-for-genetically-defined-ehlers-danlos-syndromes/
- **Event URL**: https://allevents.in/gent/precision-medicine-for-genetically-defined-ehlers-danlos-syndromes/200030247986411
- **Event Categories**: 
- **Interested Audience**: 
  - total_interested_count: 21

## Ticket Details


## Event venue details

- **city**: Gent
- **state**: OV
- **country**: Belgium
- **location**: Hotel Monasterium
- **lat**: 51.052537830594
- **long**: 3.7166501954232
- **full address**: Hotel Monasterium, Gent, Belgium

## Event gallery

- **Alt text**: Precision Medicine for Genetically Defined Ehlers-Danlos Syndromes
  - **Image URL**: https://cdn-az.allevents.in/events9/banners/faa3cba6423e0c9fe7771c98ba63ccaa59d04f60c7f30cabcfe176be41886079-rimg-w1200-h630-dcf8f8f8-gmir?v=1787940990

## FAQs

- **Q**: When and where is Precision Medicine for Genetically Defined Ehlers-Danlos Syndromes being held?
  - **A:** Precision Medicine for Genetically Defined Ehlers-Danlos Syndromes takes place on Thu, 03 Sep, 2026 at 09:00 am to Fri, 04 Sep, 2026 at 05:00 pm at Hotel Monasterium, Gent, Belgium.
- **Q**: Who is organizing Precision Medicine for Genetically Defined Ehlers-Danlos Syndromes?
  - **A:** Precision Medicine for Genetically Defined Ehlers-Danlos Syndromes is organized by The Ehlers-Danlos Society.

## Structured Data (JSON-LD)

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        "startDate": "2026-09-03T09:00:00+02:00",
        "endDate": "2026-09-04T17:00:00+02:00",
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        "description": "The Ehlers-Danlos Society is delighted to be hosting the Precision Medicine for Genetically Defined Ehlers-Danlos Syndromes event, taking place on September 3-4, 2026, in Ghent, Belgium. This is a hybrid event that can be viewed from anywhere in the world, in over 60+ languages.\n\nThis event is for h",
        "organizer": [
            {
                "@type": "Organization",
                "name": "The Ehlers-Danlos Society",
                "url": "https://allevents.in/org/the-ehlers-danlos-society/4713670",
                "description": "The Ehlers-Danlos Society creates resources for those with the connective tissue disorders EDS and HSD. Medical information should be discussed with your doctors."
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```