# Event Details

- **Event Name**: KY Rare Disease Day 2026
- **Event Start and End Date**: Thu, 26 Feb, 2026 at 12:30 pm – Thu, 26 Feb, 2026 at 02:00 pm
- **Event Description**: Mark your calendars to join us February 26, 2026 at the Educational Center at the Kentucky State Capitol! We are excited to join the community together for a family-oriented event. We will have food, speakers, raffles and kid's crafts. This is an opportunity for locals with Rare Diseases to share their stories, business to show their support and to spend time with other families who have rare diseases. Please RSVP on our website. 

Event Speakers:

Kellie Vanasse - President of The Kentuckiana
Connective Tissue Foundation, Patient with hEDS
Robert Myrick - KY NORD Ambassador, Patient with AHUS
Sarah Teeters - Aging & Disabled Citizens for Louisville Metro Government
Roger Davis II, DPT - Manager of Therapy Services at Owensboro Health
Ben Keeton - Senior Vice President of RunSwitch PR
Abby Pike, LPCA - Psychotherapist
Melissa Raley & Katie-Ryan Fotiadis - Advocate & Chronic Illness Warrior
Kayla Eggleston - Patient with hEDS, Student in Bellarmine’s Radiation Therapy Program
Amanda Gabehart - President of Chronic Illness Alliance, Patient with GPA/Formerly Wegener’s Disease
Kristie Jesionek - National Director of Nutrition, Sales/Business Development at Optum Rx
Kristina Pond, MD - Internal Medicine Physician, Patient with hEDS

Event Raffles/Sponsors:

Texas Roadhouse
Normalyte
Louisville Zoo
Southern Soirees Bakery
Thornberry’s Bakery
Danni’s Dessert
Moonstone Lashes
The Bourbon Life Podcast
Chick-fil-A
Ark Encounter
NORD
One Love Hemp
PB&J Crafts


Please email:
Kellie Vanasse 
kellie.vanasse@tkctf.org

Emily Hamilton
emily.hamilton@tkctf.org
- **Event URL**: https://allevents.in/frankfort/ky-rare-disease-day-2026/200029312384946
- **Event Categories**: business, health-wellness, calendar, kentucky-derby
- **Interested Audience**: 
  - total_interested_count: 112

## Ticket Details

- **Ticket URL**: https://www.tkctf.org/events-1/ky-rare-disease-day-2026/form?utm_source=AllEvents.in&utm_medium=event-discovery-platform&utm_campaign=frankfort-events

## Event venue details

- **city**: Frankfort
- **state**: KY
- **country**: United States
- **location**: 706 Capital Ave, Frankfort, KY 40601
- **lat**: 38.18834
- **long**: -84.87545
- **full address**: 706 Capital Ave, Frankfort, KY 40601, United States

## Event Organizer details

- **affiliate_id**: 2
- **organizer**: The Kentuckiana Connective Tissue Foundation (https://allevents.in/org/the-kentuckiana-connective-tissue-foundation/27200263)

## Event gallery

- **Alt text**: banner
  - **Image URL**: https://cdn-az.allevents.in/events5/banners/d7d5266c4fb3f90236f9b948c40453ef3b90502e0017128d6053a39774fb1f4a-rimg-w1200-h600-dc7878dd-gmir?v=1771902411
- **Alt text**: thumbnail
  - **Image URL**: https://cdn-az.allevents.in/events5/banners/fd56fa6d5f9f6195caa5cec5b71e5e57311085b959def88f656db010f37a8994-rimg-w300-h300-dc4caadb-gmir?v=1771902411

## FAQs

- **Q**: When is the event happening?
  - **A:** Thu, 26 Feb, 2026 at 12:30 pm
- **Q**: Where is the event happening?
  - **A:** 706 Capital Ave, Frankfort, KY 40601, United States
- **Q**: Who is organizing the event?
  - **A:** The Kentuckiana Connective Tissue Foundation
- **Q**: What type of event is this?
  - **A:** business, health-wellness, calendar, kentucky-derby
- **Q**: Where can I find ticket details about KY Rare Disease Day 2026 ?
  - **A:** You can find ticket details about this event on AllEvents.

## Structured Data (JSON-LD)

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        "name": "KY Rare Disease Day 2026",
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        "startDate": "2026-02-26",
        "endDate": "2026-02-26",
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        "location": {
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        "organizer": [
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```