# Event Details

- **Event Name**: KY Rare Disease Day 2026
- **Event Start and End Date**: Thu, 26 Feb, 2026 at 12:30 pm – Thu, 26 Feb, 2026 at 02:00 pm
- **Event Description**: Mark your calendars to join us February 26, 2026 at the Educational Center at the Kentucky State Capitol! We are excited to join the community together for a family-oriented event. We will have food, speakers, raffles and kid's crafts. This is an opportunity for locals with Rare Diseases to share their stories, business to show their support and to spend time with other families who have rare diseases. Please RSVP on our website. 

Event Speakers:

Kellie Vanasse - President of The Kentuckiana
Connective Tissue Foundation, Patient with hEDS
Robert Myrick - KY NORD Ambassador, Patient with AHUS
Sarah Teeters - Aging & Disabled Citizens for Louisville Metro Government
Roger Davis II, DPT - Manager of Therapy Services at Owensboro Health
Ben Keeton - Senior Vice President of RunSwitch PR
Abby Pike, LPCA - Psychotherapist
Melissa Raley & Katie-Ryan Fotiadis - Advocate & Chronic Illness Warrior
Kayla Eggleston - Patient with hEDS, Student in Bellarmine’s Radiation Therapy Program
Amanda Gabehart - President of Chronic Illness Alliance, Patient with GPA/Formerly Wegener’s Disease
Kristie Jesionek - National Director of Nutrition, Sales/Business Development at Optum Rx
Kristina Pond, MD - Internal Medicine Physician, Patient with hEDS

Event Raffles/Sponsors:

Texas Roadhouse
Normalyte
Louisville Zoo
Southern Soirees Bakery
Thornberry’s Bakery
Danni’s Dessert
Moonstone Lashes
The Bourbon Life Podcast
Chick-fil-A
Ark Encounter
NORD
One Love Hemp
PB&J Crafts


Please email:
Kellie Vanasse 
kellie.vanasse@tkctf.org

Emily Hamilton
emily.hamilton@tkctf.org
- **Event URL**: https://allevents.in/frankfort/ky-rare-disease-day-2026/200029312384946
- **Event Categories**: business, health-wellness, calendar, kentucky-derby
- **Interested Audience**: 
  - total_interested_count: 112

## Ticket Details


## Event venue details

- **city**: Frankfort
- **state**: KY
- **country**: United States
- **location**: 706 Capital Ave, Frankfort, KY 40601
- **lat**: 38.18834
- **long**: -84.87545
- **full address**: 706 Capital Ave, Frankfort, KY 40601, United States

## Event gallery

- **Alt text**: KY Rare Disease Day 2026
  - **Image URL**: https://cdn-az.allevents.in/events5/banners/d7d5266c4fb3f90236f9b948c40453ef3b90502e0017128d6053a39774fb1f4a-rimg-w1200-h600-dc7878dd-gmir?v=1771902411

## FAQs

- **Q**: When and where is KY Rare Disease Day 2026 being held?
  - **A:** KY Rare Disease Day 2026 takes place on Thu, 26 Feb, 2026 at 12:30 pm to Thu, 26 Feb, 2026 at 02:00 pm at 706 Capital Ave, Frankfort, KY 40601, United States.
- **Q**: Who is organizing KY Rare Disease Day 2026?
  - **A:** KY Rare Disease Day 2026 is organized by The Kentuckiana Connective Tissue Foundation.
- **Q**: Who is this event for? Is it right for me?
  - **A:** KY Rare Disease Day 2026 is ideal for professionals, entrepreneurs, startup founders, and networking enthusiasts eager to grow their connections. Whether you're a first-time attendee or a longtime enthusiast in Frankfort, this event is thoughtfully curated to deliver a standout experience worth every moment. With 110+ people already showing interest, this is clearly an event worth adding to your calendar - don't miss out.

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