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ACT Dallas 2018

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ACT Dallas 2018




Our Alport family meetups are an incredible opportunity to connect with Alport experts and other Alport families.You will leave the meeting feeling empowered with your knowledge about Alport syndrome and comforted by the new friends you have met in your extended Alport family.“Go. Just go. Do whatever you can to attend, and bring the whole family. It was very helpful not only to my son, but also incredibly helpful for me and my husband as parents, and my other son who does not have AS. It helped him understand what his brother is going through, and how to support him. It brought us closer as a family.”Lisa Bonebrake, Alport mom, 2017 meetup attendee




These meetings provide the opportunity to:

Meet other patients and families affected by Alport syndrome
Get the latest research updates from leading experts
Learn more about disease management, available resources, and how to self-advocate.

These two-day meetings provide vital information and support for the newly diagnosed and seasoned patients.We provide program tracks for parents/adults and one designed specifically and separately for teens and young adults. This track is facilitated by trained fellow young patients and patient mentors. We also have fun activities and childcare for children ages 5-12.Travel stipends available.  For families traveling more than 200 miles to a meetup, a $100 per person travel stipend will be offered to help cover costs of travel with a maximum of $400 per family.



Also check out other Meetups in Dallas, Nonprofit Events in Dallas.

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Map University of Texas Southwestern, 5323 Harry Hines Blvd., Dallas, United States
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Alport Syndrome Foundation of USA
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