# Event Details - **Event Name**: Living Well w/Duchenne Conference 2026 - **Event Start and End Date**: Sat, 25 Jul, 2026 at 08:30 am – Sat, 25 Jul, 2026 at 03:30 pm - **Event Description**: Join us for our 4th Annual Living Well w/Duchenne Conference, dedicated to empowerment, education, & the enduring strength of DMD children.About this EventLiving Well w/Duchenne Conference is a premier gathering dedicated to shifting the narrative around Duchenne Muscular Dystrophy (DMD). While clinical research is vital, this conference focuses on the "now"—equipping individuals, families, and caregivers with the tools, community support, and innovative strategies necessary to foster a life defined by possibility rather than limitation.https://youtu.be/icBko9JCJJ0Free parking, continental breakfast and lunch will be served.Agenda?: 08:30 AM - 09:00 AMLiving Well w.Duchenne 2026Info: Registration; Sign up for Adapted for DMD Tennis Clinic; Continental Breakfast?: 09:00 AM - 09:15 AMWelcome Host: Founder/CeoInfo: Karen Guillmeno?: 09:15 AM - 09:45 AMStraight TalkHost: Abhik Banerjee MD, PhDInfo: What you should be asking from your clinics multidisciplinary care) and why multicultural clinics matter.?: 09:45 AM - 10:00 AMPanel#1: Bullying and patient rightsHost: Lorran Garrison, MS, Med, PPS School Psychologist (AlaInfo: What should the school’s response be to bullies, what resources should you ask for??: 10:00 AM - 10:10 AMA Parent's Story:Host: Lois Saur SungaInfo: How the school changed to accommodate my son with DMD?: 10:10 AM - 10:30 AMDisabilities AdvocacyHost: Adam Wasserman, JDInfo: Overview of California’s antibullying laws pertaining to DMD?: 11:00 AM - 11:30 AMExons SkippersHost: Julian Thomas MDInfo: The new exon skippers coming down the pipeline?: 11:30 AM - 12:00 PMGene TherapiesHost: Melissa Spencer, MD, PhDInfo: The new gene therapies coming down the pipeline – what is so different??: 12:00 PM - 12:30 PMNeuromuscular Equipment SpecialistHost: KJ Phillips Info: Power wheelchair? Scooter? Power assist? Which is best for my child??: 12:30 PM - 01:30 PMLunch?: 01:00 PM - 02:00 PMPanel #2 Info: Clinical trials for DMD in minority populations?: 01:00 PM - 01:20 PMDeramiocel Host: Leigh Ramos-Platt MD, MBAInfo: Deramiocel and the clinical trial experience in non-English speaking populations?: 02:20 PM - 02:50 PMInclusion and EngagementHost: Eric Ishiwata PhD Info: Why it is important to engage a diverse community into clinical trials and advocacy; history and potential solutions - **Event URL**: https://allevents.in/costa-mesa/living-well-w-duchenne-conference-2026/100001989423621606 - **Event Categories**: business, conferences - **Interested Audience**: - total_interested_count: 0 - **Event Highlights**: - Duration: 7 hours - Location: Experian Corporate Office - Languages: English ## Ticket Details - **Ticket Price Range**: min: 0, max: 0, currency: USD ## Event venue details - **city**: Costa Mesa - **state**: CA - **country**: United States - **location**: Experian Corporate Office - **lat**: 33.6892996 - **long**: -117.8739989 - **full address**: Experian Corporate Office, 475 Anton Boulevard, Costa Mesa, United States ## Event gallery - **Alt text**: Living Well w/Duchenne Conference 2026 - **Image URL**: https://cdn-az.allevents.in/events4/banners/75079185614e549189e1612726413cc77b372bbb9af882d42403123f48598024-rimg-w1071-h313-dce08e4c-gmir.jpg?v=1778755998 ## FAQs - **Q**: When and where is Living Well w/Duchenne Conference 2026 being held? - **A:** Living Well w/Duchenne Conference 2026 takes place on Sat, 25 Jul, 2026 at 08:30 am to Sat, 25 Jul, 2026 at 03:30 pm at Experian Corporate Office, 475 Anton Boulevard, Costa Mesa, United States. - **Q**: Who is organizing Living Well w/Duchenne Conference 2026? - **A:** Living Well w/Duchenne Conference 2026 is organized by Hunter's Heart Foundation. - **Q**: Who is this event for? Is it right for me? - **A:** Living Well w/Duchenne Conference 2026 is ideal for professionals, entrepreneurs, startup founders, and networking enthusiasts eager to grow their connections. Whether you're a first-time attendee or a longtime enthusiast in Costa Mesa, this event is thoughtfully curated to deliver a standout experience worth every moment. 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