Inborn Errors of Metabolism Awareness Program
World Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and management for individuals with rare diseases and their families. One such rare genetic disease are Inborn Errors of Metabolism.
The 11th annual World Rare Disease Day will be held on Wednesday, February 28, 2018. On this day, we at Pristine Organics are organizing an awareness program for “Inborn Errors of Metabolism in India."
In India, the prevalence of Inborn Errors of Metabolism is 1 in 2497 newborns. Pristine Organics cater to only 500+ IEM patients for a decade. One may believe, there is a large gap between the detection and management of IEMs. Nutritional therapy is crucial to lead a healthy life for IEM individuals. Pristine Organics through this program aims at spreading awareness of the management of Inborn Errors of Metabolism through nutritional supplementation and a natural diet.
We would like to invite you for our Pristine IEM awareness program. Please join patients, families, friends, caregivers, dietitians, researchers, health care providers, policy experts and our team this 2018 to raise Inborn Errors of Metabolism awareness on this special day.
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