2026 Rare Disease Day

RARE Is Not Rare

One out of every 10 Americans is living with a rare disease. Worldwide, there are more than 300 million people with rare diseases. Too often, these individuals and families are left isolated and without answers to their medical questions. It doesn’t have to be that way.

Rare Disease Day is a global initiative to raise awareness and generate support for individuals on a rare medical journey. It takes place on the last day of February, which this year is February 28.

The National Organization for Rare Disorders (NORD) is the trusted voice of the more than 30 million Americans living with a rare disease. We are proud to be the official U.S. partner for Rare Disease Day. We invite you to read on to learn how to #ShowYourStripes in support of those with a rare disease.

Learn more and visit: https://rarediseases.org/rare-disease-day/

You may also like the following events from CdLS Foundation:

• Next Friday, 6th March, 12:00 am, March Virtual Support Group in Avon, Connecticut
• Next Friday, 6th March, 01:00 am, Addressing Feelings of Guilt and Regret: Strategies to Employ as a Caregiver in Avon, Connecticut
• This April, 10th April, 12:00 pm, International Siblings Day in Avon, Connecticut