Last year, we raised $178,405 for rare pediatric disease! Join us in 2026 at a new location to continue to fight for the kids and families affected by rare genetic diseases.
Join us for our annual sporting clay competition and live music to support rare disease research. Shotguns & Guitars is held at Defender Outdoors Clay Sports Ranch (new location) in Fort Worth, TX on October 17, 2026.
ABOUT JAXSON
Jax was diagnosed with a single gene defect in the MTRFR gene on October 30, 2014. The MTRFR gene mutation causes him to be non-verbal, fed through a feeding tube, affects his ability to walk and optic nerve atrophy which leads to blindness. It is caused by a defect in the function of mitochondria within the cells of the body.
Our goal is to slow the progression of this disease while working towards a cure for Jax and future generations. This fundraising event directly benefits gene therapy research which looks to be a promising life-extending treatment for Jax who is now 13.
SPORTING CLAY FORMAT
100 Targets
4-Person Teams
Team, Individual & Junior Awards will be presented
Mulligans Available for Purchase
MTRFR SYMPTOMS (aka C12orf65)
Ataxia
Optic Atrophy
Peripheral Neuropathy
Shortened Lifespan
Endocrine/Metabolic Defects
Neuromuscular Disorder
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